About ILFA

History of the Irish Lung Fibrosis Association

ILFA was founded in 2002 to honour the memory of Fergus Goodbody who died from Lung Fibrosis. ILFA was set up by Nicky Goodbody, Terence Moran, Marie Sheridan, and Professor Jim Egan. The primary aims of the Irish Lung Fibrosis Association are to provide a source of information and support to people with the condition and to provide funding for research and the development of new treatments for Lung Fibrosis.

ILFA is funded solely by donations and the fundraising efforts of our supporters are vitally important for the continued existence of our research and education programmes.


Postal address and address for correspondence: ILFA, PO Box 10456, Blackrock, Co. Dublin.

Registered address : Lavery House, Earlsfort Terrace, Dublin 2.

Directors: Professor Jim Egan, Nicola Goodbody, Marie Sheridan, Terence Moran.

Company registration no. 367940

Charitable exemption number CHY 15462


Point of Contact

ILFA has appointed Gemma O’Dowd as the Management/Development Officer. Gemma has extensive experience in managing and leading various projects in the non-profit sector.  Her role will cover a wide range of areas, including assisting members of the Managing Committee in the running of the Association,  fund raising initiatives and raising the profile of ILFA.

Please contact Gemma on 086 871 5264 or at info@ilfa.ie if you have any queries.



The ILFA committee is made up of a small number of volunteers who have all been touched in some way by Lung Fibrosis.

Our current committee members are Eddie Cassidy (Chairperson/Treasurer), Professor Jim Egan, Mary O’Connor, Nicky Goodbody (nee Figgis),  Nicola Cassidy, Claire Tunissen, Sancha Mulcahy, Liam Galvin, Charlene Connolly and Maria Farren.

The ILFA committee is also assisted by a number of representatives nationwide; Lorraine Ryan (Limerick Representative), Collette McGowan (Leitrim representative), and Helen Durney (Kildare representative).

The Dublin based committee members meet once a month in Dublin city centre. Other local representatives based around the country provide local input to the committee from their home county. We would be delighted to hear from you if you would be interested in joining the ILFA committee or becoming a local representative. Please contact ILFA ,  write to ILFA at PO Box 10456, Blackrock, Co. Dublin or call 086 871 5264.

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